Confession # 2: I LIVE WITH A BUNCH OF COFFEE CATS!!

Mommy! Mommmy!  Some days I think that’s all I hear! Well today has just been one of those days. I know there will come a day when I  will miss it but as for now I have no idea how every hair on my head is not either gray or missing.

As I am cooking dinner and getting bubs meds mixed in his baby food little miss Khylee comes in the kitchen with her baby doll, Baby Girl,  and then runs and gets her baby doll’s food and spoon.  She comes over and stands beside me mimicking every move I make. Then in walks Addy with her baby and a fake screw driver she plans to use as her baby’s spoon. She plops her baby doll down right next to Baby Girl and positions herself beside Khy making sure to copy every move, sound, and gesture Khylee makes.  “Hey!” exclaims Khylee, “Quit coffeeing me Addy!” Addy looks at Khylee with a smirk and replies, “coffeeeeeee meee Khyweeeee!” to that Khylee yells, “No! You’re the coffee cat Addy not me!” Then Khy looks at me and asks me who I think the big “coffee cat” is. In response to that I asked her what she was doing and she told me that she was feeding her baby like I was feeding Jaxson.  So I stated that she was copying me and that Addy is copying her because she loves her and wants to be just like her. I explained to her that Addy learns off of copying her and that she learns off of copying me so I guess that makes us all copy cats. She looked down and pouted so I asked her what’s wrong and she says “well daddy doesn’t like cats!” I couldn’t help myself, I had to laugh.  They fight and argue every day. I can only imagine how it’s going to be in the future. First over barbies and toys, next over clothes and boys! No matter what I love my kids and I can never say there was a boring day that’s for sure!

Over all it has been a decent day except for the fact that Jax has a doctor appointment with the neurologist tomorrow. I can’t help but be a little nervous. After all our Journey with I.S. is just beginning because infantile spasms are not actually a diagnosis it is a symptom. So now we start testing and trying to figure out what underlying issue is causing his seizures. We should get back his blood work tomorrow to see if he has any metabolic disorders.  Next will be an MRI but I am not sure if she is going to do that tomorrow or just schedule it. All I can do is just have faith and keep praying.

Joshua 1:9 - "Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go."

<3 Kessiah

The coffee cats!

tummy time for bubs

Confession #1: I had a conversation today with my hubby about poop…

Yep! You read that right...poop! I know Romantic right! Ya see Jaxson  was looking like he was having a hard time going to the restroom so I told Rodney and he said he had already changed a poop. So as a concerned mother I asked if it was hard or soft. Rodney replied well it was solid but it wasn’t hard. I wonder what our conversation will be like on Valentine’s Day since we are the epitome of the word romantic!

Taboo as it may be when you become a parent it’s like you sign an unwritten contract of all sorts of things you never thought you would say or do (kind of like the military). I think Rodney and I have been through and said things we never dreamed of saying but having a child with medical needs brings it to an all new level.  It’s been interesting to say the least but at the same time I think it has brought us closer together. Having a sick child adds soo much stress, worry, uncertainty, and not to mention has changed our daily/monthly schedule, I could easily see couples fall apart. But for us this diagnosis has brought all of those things but so much more…faith, love, and appreciation. It has been and still is an adjustment not just for Rodney and me but for the girls as well. I feel like most of my day consists of giving Jax doses of medication (5 to be exact) and the rest is changing diapers, feedings, cleaning, and trying to keep everyone as happy as possible. I am still in the process of getting us on a better schedule and making sure to plan special things for the girls. I know eventual y I will get the hang of it. God doesn’t bless just anyone with a special child so I have faith he will get us through.

We don’t really know what bubby’s future will be like. Statistics say he has only a 10% chance to be “normal”…that is not ending up with mental retardation, cerebral palsy, cognitive disorders, motor disorders, Autism, other forms of epilepsy, and many other problems.  All we know is that bubby is already beating statistics in that he is developing. He is behind and developing slow but he is developing, he is smiling, and he is aware of his surroundings. God is good and he is already showing us that he is in control and that statistics mean nothing. Every smile, every giggle, and every day with one less seizure is a blessing. He will guide us through this and bubby may never be perfect but he is a miracle and God is going to do great things through him. I am truly thankful that I have two amazing men who are heroes in my eyes… One wears diapers and one wears combat boots but both are so strong and brave and both have the girls and my hearts forever. I am equally thankful for my princesses who bring so much love and laughter to a house that needs just that!  

As a first blog I don’t know if talking about poop is appropriate or not but the fact of the matter is it’s our reality. Our life is far from average and it is full of ups and downs but no matter what the things I share with you in this blog are true. I hope you will follow me (us) along on this crazy ride I call my life and can understand the humor and the tragedy that is me! I will get better at writing blogs and I have a few other tabs in the works for other things that I enjoy such as cooking and couponing as well as Jaxson updates , All about the kids, and information for you to read on that explains infantile spasms.  It’s all in the works just be patient with me...I mean come on I am a busy mommy of three! Thank you all for your love and support!

<3 Kessiah