Yep! You read that right...poop! I know Romantic right! Ya
see Jaxson was looking like he was
having a hard time going to the restroom so I told Rodney and he said he had
already changed a poop. So as a concerned mother I asked if it was hard or
soft. Rodney replied well it was solid but it wasn’t hard. I wonder what our conversation
will be like on Valentine’s Day since we are the epitome of the word romantic!
Taboo as it may be when you become a parent it’s like you
sign an unwritten contract of all sorts of things you never thought you would
say or do (kind of like the military). I think Rodney and I have been through
and said things we never dreamed of saying but having a child with medical
needs brings it to an all new level. It’s
been interesting to say the least but at the same time I think it has brought
us closer together. Having a sick child adds soo much stress, worry,
uncertainty, and not to mention has changed our daily/monthly schedule, I could
easily see couples fall apart. But for us this diagnosis has brought all of
those things but so much more…faith, love, and appreciation. It has been and
still is an adjustment not just for Rodney and me but for the girls as well. I
feel like most of my day consists of giving Jax doses of medication (5 to be exact)
and the rest is changing diapers, feedings, cleaning, and trying to keep everyone
as happy as possible. I am still in the process of getting us on a better schedule
and making sure to plan special things for the girls. I know eventual y I will
get the hang of it. God doesn’t bless just anyone with a special child so I
have faith he will get us through.
We don’t really know what bubby’s future will be like. Statistics
say he has only a 10% chance to be “normal”…that is not ending up with mental
retardation, cerebral palsy, cognitive disorders, motor disorders, Autism, other
forms of epilepsy, and many other problems. All we know is that bubby is already beating
statistics in that he is developing. He is behind and developing slow but he is
developing, he is smiling, and he is aware of his surroundings. God is good and
he is already showing us that he is in control and that statistics mean nothing.
Every smile, every giggle, and every day with one less seizure is a blessing.
He will guide us through this and bubby may never be perfect but he is a miracle
and God is going to do great things through him. I am truly thankful that I
have two amazing men who are heroes in my eyes… One wears diapers and one wears
combat boots but both are so strong and brave and both have the girls and my
hearts forever. I am equally thankful for my princesses who bring so much love
and laughter to a house that needs just that!
As a first blog I don’t know if talking about poop is
appropriate or not but the fact of the matter is it’s our reality. Our life is
far from average and it is full of ups and downs but no matter what the things
I share with you in this blog are true. I hope you will follow me (us) along on
this crazy ride I call my life and can understand the humor and the tragedy
that is me! I will get better at writing blogs and I have a few other tabs in
the works for other things that I enjoy such as cooking and couponing as well
as Jaxson updates , All about the kids, and information for you to read on that
explains infantile spasms. It’s all in
the works just be patient with me...I mean come on I am a busy mommy of three!
Thank you all for your love and support!
<3 Kessiah
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