Yesterday Jax had a neurologist appointment. She decided to up his dose of topamax to 75mg a day so now he will have two pills in the morning and three at night. We haven't seen any clusters of spasms since January 25 but he has been having another type of seizure that looks more like regular seizures and is still having single jerks and head drops. He has been super grouchy and irritable in the day and restless at night so its been tough but I thank God that the medication is working!! He has a rash on his head that we were concerned about and she said it was an adverse reaction to the glue that they had used during the EEG. On that note she wants to schedule another EEG and an MRI but she wants to wait until his head clears up a little better. She also addressed our concerns about the topamax possibly causing him loose muscle control on some days and she assured us that it had nothing to do with the topamax and that it was part of his development delays. So I guess maybe he is trying to regress some. I hope not but she said that if he is to regress or have a relapse of the clusters (which does sometimes happen) then he will be put on a stronger medication. On a good note his metabolic work came back normal...praise Jesus!! Jaxson has another appointment with her on March 7th so we will see when she is wanting to do the EEG and MRI and fingers crossed the topamax will still be working.
Jaxson will have a 6 month check up with his pediatrician on the 13th. There we will discuss his development delays and enroll in the EFMP and maybe see if he qualifies for some early intervention or whatever program they have on base. Hopefully we can get him to progress some...although no matter what the important thing now is getting his seizures stopped.
Please continue to pray for Jaxson!!
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| I'm grouchy! |
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| sweet boy! |
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